Positive Health Online

Abstract

LONG and BENNET, School of Healthcare, University of Leeds, Room 3.10, Baines Wing. Leeds, LS2 9UT, UK. a.f.long@leeds.ac.uk conducted a narrative-basis approach regarding complementary and alternative (CAM) approaches to cope with the impact of Meniere's syndrome.

Background

To identify the significant events and persons prompting search for non-biomedical / complementary and alternative (CAM) ways to cope with the impact of Meniere's syndrome, the CAM therapies used and perceived benefits.

Methodology

A narrative-based approach, with participants recruited from web sites and newsletters of two Meniere's Societies (in the UK and in Victoria, Australia) and searches of a monthly newsletter, Spin, for letters related to the use of CAM therapies. A thematic approach to data analysis was undertaken.

Results

Twenty personal, written stories were obtained and 23 letters. Commonly, critical events or changes in the condition provided the catalyst to seek alternative treatment, and sometimes significant others (a GP, CAM practitioner, friends, family). The accounts illustrate a range and variety of journeys that participants travelled in locating satisfactory ways to manage the condition, and the essential 'personal' nature of the experience and perceived benefits. No single CAM solution or pathway was evident.

Conclusion

The findings suggest the importance of 'finding your own way', having a positive outlook and being proactive in regaining control over one's health, and the value of early recommendations to 'perhaps try alternative/ CAM treatments'.

References

Long AF and Bennett T. Coping with Meniere's disease: experience and benefits from the use of complementary and alternative medicine. Chronic Illness. 5(3):219-32. Sep 2009.

Comment

Any and all research and progress in the treatment of Meniere's would be highly welcome by sufferers of this wretched Meniere's condition.